Analysis of the world experience on the approaches to the definition of disability: on the way to reforming the system of medical and social expertise
DOI:
https://doi.org/10.26641/2307-0404.2024.2.307469Ключові слова:
disability, impairment, medical and social expertise, international classification of functioning, recognition of the status ofАнотація
The Ukrainian system of medical and social expertise needs to revise its conceptual and methodological foundations in accordance with the realities of the current development of social sciences in the world and demand of the state regarding the modern understanding of disability. The purpose of the study was to analyze international experience and legislation on policy towards persons with disabilities and systematic approaches to the criteria of violation of functioning and the possibilities of determining the status of "person with disabilities" using the basic principles of the International Classification of Functioning (ICF), Impairment and Health to create optimal approaches to determining the criteria for disability in Ukraine. The study was based on the analysis of available scientific literature and legislative documents of developed countries on the understanding of the concept of "person with a disability". The scientometric databases used were Scopus, Web of Science, Google Scholar, and MedLine. Data from the official websites of the Political Department of the European Parliament, WHO, the United Nations, UNICEF, the World Bank. According to the results of the study, it is determined that a single state body is responsible for determining the status of a person with a disability in sustainable development countries using a multidisciplinary approach. The author identifies 3 main components that most developed countries assess when determining disability: economic, medical and social. At the same time, the main criterion is decreased performance. It has been established that since 2022, Spain has completely switched to the criteria of the International Classification of Functioning in determining the signs of disability, basing the severity of a person's condition as a degree of disability on a percentage decrease in the person's functioning. Some European countries use selective categories of the ICF.
Посилання
Disability [Internet]. World Health Organization [cited 2023 May 06]. Available from: https://www.who.int/health-topics/disability#tab=tab_1
Okoro CA, Hollis ND, Cyrus AC, Griffin-Blake S. Prevalence of Disabilities and Health Care Access by Disability Status and Type Among Adults – United States, 2016. MMWR Morb Mortal Wkly Rep. 2018 Aug 17;67(32):882-7. doi: https://doi.org/10.15585/mmwr.mm6732a3
World report on disability [Internet]. World Health Organization. 2011 [cited 2023 Jul 15 ]. 28 с. Available from: https://iris.who.int/handle/10665/87365
World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO; 2001. р. 3-29.
[On the approval of the national classifier NK 030:2022. Order of the Ministry of Economy of Ukraine dated 2022 Apr 9, No. 810-22]. [Internet]. 2022 [cited 2023 Jul 06]. Ukrainian.
Braithwaite J, Mont D. Disability and poverty: a survey of World Bank Poverty Assessments and impli-cations. ALTER-European Journal of Disability Research. 2009;3(3):219-32. doi: https://doi.org/10.1016/j.alter.2008.10.002
Braña J-P, Antón J-I. Poverty, disability and de-pendency in Spain. Spanish Economy Papers. 2011;29:14-26.
8.Cullinan J, Lyons S. The private economic costs of adult disability. In: The economics of disability [Internet]. Manchester University Press; 2015. Available from: http://www.manchesterhive.com/view/9781847799814/9781847799814.00010.xml
İpek E. The costs of disability in Turkey. Journal of Family and Economic Issues. 2020 Sep 03;41(2):229-37. doi: https://doi.org/10.1007/s10834-019-09642-2
Loyalka P, Liu L, Chen G, Zheng X. The Cost of Disability in China. Demography. 2014:51(1):97-118. doi: https://doi.org/10.1007/s13524-013-0272-7
Tibble M. Review of Existing Research on the Extra Costs of Disability. Department for Work and Pensions Working Paper No. 21. Leeds: Corporate Document Services; 2005. 56 р.
UNCESCO (United Nations Educational, Scientific and Cultural Organization). Education for all global monitoring report: Reaching the marginalized (Paris) [Internet]. 2010 [cited 2023 Apr 23]. Available from: https://www.unesco.org/gem-report/en/reaching-marginalized
Francis L, Silvers A. Perspectives on the Meaning of "Disability". AMA Journal of Ethics. 2016;18(10):1025-33. doi: https://doi.org/10.1001/journalofethics.2016.18.10.pfor2-1610
Disability in the United Kingdom [Internet]. Wikipedia. [cited 2023 Aug 15]. Available from: https://en.wikipedia.org/wiki/Disability_in_the_United_Kingdom
Definition of disability [Internet]. Australian Government. 2019 [cited 2023 Feb 25]. Available from: https://www.apsc.gov.au/working-aps/diversity-and-inclusion/disability/definition-disability
16.Barlev L, Pur Y, Bachar Y. [Internet]. People With Disabi-lities in Israel 2021. Facts and Figures. 2021. Available from: https://www.thejoint.org.il/wp-content/uploads/2021/12/People-With-Disabilities-in-Israel-2021-Facts-and-Figures.pdf
The Ultimate CPP Disability Guide. Disability Credit Canada [Internet]. [cited 2023 Sep 5]. Available from: https://disabilitycreditcanada.com/ultimate-cpp-disability-guide/
Annual Report on Government Measures for Persons with Disabilities (Summary) 2020. Cabinet Office [Internet]. 2020 [cited 2023 Mar 10]. Available from: https://www8.cao.go.jp/shougai/english/annualreport/2020/index-pdf.html
Khachisuka K. [State of the rating scale in rehabilitation medicine]. Reabilitatsiya Igakukhakusё. 2003. p. 58-63. Russian.
Organisation for Economic Co-operation and Development, European Union. Health at a glance: Europe 2016: state of health in the EU cycle [Internet]. Paris: Organisation for Economic Co-operation and Development; 2018 [cited 2023 Mar 10]. Available from: http://dx.doi.org/10.1787/9789264265592-en
[Disability in France: figures and statistics revealed by the DREES]. [Internet]. 2023 [cited 2023 Aug 25]. France. Available from: https://www.mydl.fr/le-handicap-en-france-chiffres-et-statistiques-reveles-par-la-drees/
Disability and chronic disease. About one in every six people in Germany lives with a severe disability or chronic disease. Federal Anti-Discrimination Agency [Internet]. [cited 2023 Aug 25]. Available from: https://www.antidiskriminierungsstelle.de/EN/about-discrimination/grounds-for-discrimination/disability-and-chronic-disease/disability-and-chronic-disease-node.html
Mediathek. Unsere digitalen Angebote finden Sie hier gebündelt. Videos, Podcasts, Bildergalerien und Webdokus [Internet]. [cited 2023 Aug 13]. Available from: https://www.bmas.de/DE/Service/Mediathek/mediathek.html
European Health Interview Survey (EHIS) [Internet]. Luxembourg: Eurostat; 2018 [cited 2023 Mar 15]. Available from: https://ec.europa.eu/eurostat/cache/metadata/en/hlth_det_esms.htm
Disability statistics: prevalence and demographics. In: Statistics explained [website]. [Internet]. Luxembourg: Eurostat; 2015 [cited 2023 Aug 23]. Available from: https://ec.europa.eu/eurostat/statistics-explained/pdfscache/34409.pdf
Letter to the Parliament. Nederlandse internationale inzet voor persons with a disability. Dutch international efforts for persons with a disability [Internet]. 2019 [cited 2023 Aug 25]. Available from: https://www.rijksoverheid.nl/documenten/kamerstukken/2019/07/02/kamerbrief-over-nederlandse-internationale-inzet-voor-mensen-met-een-beperking
Disability [Internet]. Tryggingastofnun [cited 2023 May 25]. Available from: https://www.tr.is/en/disability
Arconzo G. La normativa a tutela delle persone con disabilita nella giurisprudenza della Corte costituzionale. Universita e persone con disabilita. Percorsi di ricerca applicati all’inclusione a vent’anni dalla legge, No. 104 del 1992. Milano: Franco Angeli; 2013. р. 17-32.
Global health data exchange. Seattle (WA): Institute for Health Metrics and Evaluation [Internet]. 2019 [cited 2023 Aug 23]. Available from: http://ghdx.healthdata.org/gbd-results-tool
Citarella A, Sanchez Iglesias AI, Gonzalez Bal-lester S, Gentil Gutierrez AA, Maldonado Briegas JJ, Vicente Castro F, et al. [Being disabled persons in Spain: policies, stakeholders and services]. Revista INFAD de Psicología. 2020;1(1):507-16. Spanish. doi: https://doi.org/10.17060/ijodaep.2020.n1.v1.1869
Brana J-P, Anton J-I. Pobreza, discapacidad y de-pendencia en Espana. Papeles de Economia Espanola. 2011;29:14-26.
Disabled people in 2021. Statistics Poland [Internet]. [cited 2023 Aug 14]. Available from: https://stat.gov.pl/en/topics/living-conditions/social-assistance/disabled-people-in-2021,7,3.html
European comparative data on Europe 2020 & people with disabilities. Leeds: Centre for European Social and Economic Policy; (Final report for the Academic Network of European Disability Experts) [Internet]. 2017 [cited 2023 Aug 25]. Available from: https://digitalcommons.ilr.cornell.edu/cgi/viewcontent.cgi?article=1569&context=gladnetcollect
Rabinovich L. Work Capacity Assessments for Disability Benefit Determinations: An International Comparison. Ann Arbor, MI. University of Michigan Retirement and Disability Research Center (MRDRC) Working Paper; MRDRC WP 2021-438 [Internet]. 2021 [cited 2023 Aug 05]. Available from: https://mrdrc.isr.umich.edu/publications/papers/pdf/wp438.pdf
GBD 2015 Disease and Injury Incidence and Pre-valence Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 310 diseases and injuries, 1990-2015: a systematic ana-lysis for the Global Burden of Disease Study 2015. Lancet. 2016;388(10053):1545-602. doi: https://doi.org/10.1016/S0140-6736(16)31678-6
Vardakastanis I. Shaping the EU agenda for disability rights 2020-2030: a contribution from the European Economic and Social Committee (own-initiative opinion) SOC/616 [Internet]. 2019 [cited 2023 Mar 10]. Available from: https://www.eesc.europa.eu/en/our-work/opinions-information-reports/opinions/shaping-eu-agenda-disability-rights-2020-2030-contribution-european-economic-and-social-committee-own-initiative-opinion
Statistical Office of the Republic of Slovenia [Internet]. [cited 2023 Aug 14]. Available from: https://www.stat.si/StatWeb/en/News/Index/7715
World Bank. Disability Policy and Disability Assessment System in Latvia [Internet]. 2020 [cited 2023 Aug 05]. Available from: https://www.lm.gov.lv/lv/media/9799/download
Galvin JE, Tolea MI, Rosenfeld A, Chrisphonte S. The Quick Physical Activity Rating (QPAR) scale: A brief assessment of physical activity in older adults with and without cognitive impairment. PLoS ONE. 2020;15(10):e0241641. doi: https://doi.org/10.1371/journal. pone.0241641
Pereira LA, da Silva AG, Hemanny C, de Jesus R, Moromizato M, Vieira T, et al. Translation, crosscultural adaptation, and validation of the Behavioral Activity Rating Scale (BARS) for the Brazilian population. Trends Psychiatry Psychother. 2023;45:e20210310. doi: https://doi.org/10.47626/2237-6089-2021-0310
WHO Disability Assessment Schedule 2.0 [Internet]. 2017 [cited 2023 Feb 25]. Available from: http://www.who.int/classifications/icf/more_whodas/en/
42.Prodinger B, Stucki G, Coenen M, Tennant A. The measurement of functioning using the International Classification of Functioning, Disability and Health: comparing qualifier ratings with existing health status instruments. Disability and Rehabilitation [Internet]. 2017Oct.8;41(5):541-8. Available from: https://www.tandfonline.com/doi/full/10.1080/09638288.2017.1381186
##submission.downloads##
Опубліковано
Як цитувати
Номер
Розділ
Ліцензія
Авторське право (c) 2024 Медичні перспективи
Ця робота ліцензується відповідно до Creative Commons Attribution 4.0 International License.
Submitting manuscript to the journal "Medicni perspektivi" the author(s) agree with transferring copyright from the author(s) to publisher (including photos, figures, tables, etc.) editor, reproducing materials of the manuscript in the journal, Internet, translation into other languages, export and import of the issue with the author’s article, spreading without limitation of their period of validity both on the territory of Ukraine and other countries. This and other mutual duties of the author and all co-authors separately and editorial board are secured by written agreement by special form to use the article, the sample of which is presented on the site.
Author signs a written agreement and sends it to Editorial Board simultaneously with submission of the manuscript.