Effect of efficiency in treatment social and psychological factors life in children with epilepsy (cohort retrospective study)
DOI:
https://doi.org/10.15587/2519-4798.2019.174216Keywords:
epilepsy, children, social and psychological factors, problems and aspects of lifeAbstract
An important task of modern pediatric neurology is to increase the effectiveness of treatment of epilepsy in children. Traditional criteria for assessing the effectiveness of treatment, based on the indicators of laboratory and instrumental studies, reflect only the biological component of the picture of the disease and it is necessary to apply a criterion for assessing the state of other basic functions of the child.
The purpose. To identify the most significant social and psychological problems and aspects of the lives of children and adolescents with epilepsy, depending on the effectiveness of treatment (children with controlled and uncontrolled attacks) from the point of view of patients, their parents and health care professionals, and raising awareness of the sub- the issues related to this state to improve the quality of care for this group of patients to lead a better life.
Materials and methods. Surveys on social, psycho-emotional factors of life of children with epilepsy with controlled and uncontrolled attacks were conducted during 1 year with the help of questionnaires for 3 groups of respondents: children and adolescents from 12 to 18 years old, patients with epilepsy, their parents and the medical staff who are in contact with children with epilepsy in their work, the statistical processing of the received data is carried out.
Results. The study showed the main factors influencing the lives of children with epilepsy from the point of view of patients themselves, their parents and health professionals. These are social (the opportunity to attend school, communicate with peers, get education and employment in the future) and psycho-emotional (fear of their illness, its concealment from others, difficulty in learning) factors.
Conclusions. Most children with uncontrolled attacks receive home-schooling, miss 25.37±2.17 days of schooling, have problems communicating with new people, friends, less self-confident. More than a third of the respondents were informed about problems with memory, concentration and difficulties with math. A common problem for children with epilepsy and their parents is the fear of the future: the opportunity to get education and employment. Parents are concerned about further independent life. For children with uncontrolled attacks, their parents and health workers, the top priority is the effectiveness of treatment - overcoming attacks and the ability to lead an active social life. The complication between patients, their parents and doctors is higher in a group of children with controlled attacks
References
- Sukhonosova, O. Yu. (2017). Comparative analysis of incidence and prevalence of nervous system diseases and epilepsy in children residing in Ukraine and Kharkiv region. International Medical Journal, 23 (1), 65–69.
- Fisher, R. S., Acevedo, C., Arzimanoglou, A., Bogacz, A., Cross, J. H., Elger, C. E. et. al. (2014). ILAE Official Report: A practical clinical definition of epilepsy. Epilepsia, 55 (4), 475–482. doi: http://doi.org/10.1111/epi.12550
- Kirabira, J., Forry, J. B., Kinengyere, A. A., Adriko, W., Amir, A., Rukundo, G. Z., Akena, D. (2019). A systematic review protocol of stigma among children and adolescents with epilepsy. Systematic Reviews, 8 (1), 21. doi: http://doi.org/10.1186/s13643-019-0940-9
- Ferro, M. A. (2014). Risk factors for health-related quality of life in children with epilepsy: A meta-analysis. Epilepsia, 55 (11), 1722–1731. doi: http://doi.org/10.1111/epi.12772
- Sadr, S. S., Javanbakht, J., Javidan, A. N., Ghaffarpour, M., Khamse, S., Naghshband, Z. (2016). Descriptive epidemiology: prevalence, incidence, sociodemographic factors, socioeconomic domains, and quality of life of epilepsy: an update and systematic review. Archives of Medical Science, 14 (4), 717–724. doi: http://doi.org/10.5114/aoms.2016.60377
- Fayed, N., Davis, А. M., Streiner, L. D., Rosenbaum, P. L., Cunningham, C. E., Lach, L. M. et. al. (2015). Children's perspective of quality of life in epilepsy.Neurology, 84 (18), 1830–1837. doi: http://doi.org/10.1212/wnl.0000000000001536
- Ramsey, R. R., Loiselle, K., Rausch, J. R., Harrison, J., Modi, A. C. (2016). Predictors of trajectories of epilepsy-specific quality of life among children newly diagnosed with epilepsy. Epilepsy & Behavior, 57, 202–210. doi: http://doi.org/10.1016/j.yebeh.2016.02.002
- Rosenberg, E. C., Louik, J., Conway, E., Devinsky, O., Friedman, D. (2017). Quality of Life in Childhood Epilepsy in pediatric patients enrolled in a prospective, open-label clinical study with cannabidiol. Epilepsia, 58 (8), e96–e100. doi: http://doi.org/10.1111/epi.13815
- Conway, L., Widjaja, E., Smith, M. L. (2017). Single-item measure for assessing quality of life in children with drug-resistant epilepsy. Epilepsia Open, 3 (1), 46–54. doi: http://doi.org/10.1002/epi4.12088
- Kovtyuk, N. І. (2015). Regarding the Possibility of Improving the Quality of Life in Children with Epilepsy. Actual problems of transport medicine, 1 (3 (41-1)), 21–24. Available at: http://dspace.bsmu.edu.ua:8080/xmlui/handle/123456789/9334
- Choi, H.-Y., Kim, S. E., Lee, H. W., Kim, E.-J. (2016). Social Behavioral Problems and the Health-Related Quality of Life in Children and Adolescents with Epilepsy. Psychiatry Investigation, 13 (5), 488–495. doi: http://doi.org/10.4306/pi.2016.13.5.488
- Chan, C. J., Zou, G., Wiebe, S., Speechley, K. N. (2015). Global assessment of the severity of epilepsy (GASE) Scale in children: Validity, reliability, responsiveness. Epilepsia, 56 (12), 1950–1956. doi: http://doi.org/10.1111/epi.13216
- Esetova, A. A., Tuleeva, T. I., Dikhanbayeva, G. A. (2017). Evaluation of quality of life of children with epilepsy by QOLCE questionnaire in South Kazakhstan Neurosurgery and Neurology of Kazakhstan, 2 (47), 20–25.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2019 Olga Sukhonosova
This work is licensed under a Creative Commons Attribution 4.0 International License.
Our journal abides by the Creative Commons CC BY copyright rights and permissions for open access journals.
Authors, who are published in this journal, agree to the following conditions:
1. The authors reserve the right to authorship of the work and pass the first publication right of this work to the journal under the terms of a Creative Commons CC BY, which allows others to freely distribute the published research with the obligatory reference to the authors of the original work and the first publication of the work in this journal.
2. The authors have the right to conclude separate supplement agreements that relate to non-exclusive work distribution in the form in which it has been published by the journal (for example, to upload the work to the online storage of the journal or publish it as part of a monograph), provided that the reference to the first publication of the work in this journal is included.
