The Issue on Classification of Needs of Families Raising Children with Special Needs (Systematic Approach)

Authors

DOI:

https://doi.org/10.32626/2227-6246.2022-56.85-107

Keywords:

family needs, children with special needs, subsystem, family system, family raising a child with special needs, siblings, parental subsystem

Abstract

Families raising children with special needs differ from other families in the large number and variability of needs. Scientific studies highlight the issue of the specific needs of the family, but for the most part their generalized totality is described.

Therefore, the purpose of the article is to explore and highlight the needs in such families and describe them in the context of the individual, marital, parental and sibling subsystems of the family system.

To achieve the goal the following methods were used: theoretical – analysis, systematization, classification and generalization; empirical – observation, conversation, interview and method of expert assessments.

Research results. A total of 18 family needs were identified and distributed in accordance with family subsystems – individual, marital, parental and sibling. In the context of the individual subsystem the following needs are identified: the need for emotional response to negative emotions, the need for personal space, the need for support, the need for care in relation to one’s own self. For the marital subsystem common needs for both partners are defined (in love, support, guardianship, closeness of the partner, material and sexual needs). In the parental subsystem specific needs are characterized: for truthful information, adaptation and acceptance of the role of “parents of a special child”, in finding the meaning of interaction in the “parents-special child” system; in society’s acceptance of a special child, the need to confirm the changes/dynamics of the child’s development. The needs of brothers and/or sisters in the sibling subsystem are formulated: in attention and love from parents, informing about the somato-psychological characteristics of a special child, distribution of responsibilities according to the age of siblings.

Conclusions. Identifying the needs of the family and determining the degree of their severity is of practical importance for the implementation of effective socio-psychological support. Frustration of unconscious needs leads to increased tension and deterioration of the family microclimate. At the same time awareness of the needs of family members will be the impetus for finding the necessary resources and finding the best ways to meet them.

References

Asada, K., Tojo, Y., Osanai, H., Saito, A., Hasegawa, T., & Kumagaya, S. (2016). Reduced Personal Space in Individuals with Autism Spectrum Disorder. PLoS One. Retrieved from https://doi.org/10.1371/journal.pone.0146306.

Baker, J., & Fenning, R.M. (2007). Prediction of social skills in 6 year old children without development delays. American Journal of Intellectual & Developmental Disability, 112, 375-91. Retrieved from https://meridian.allenpress.com/ajidd/article-abstract/112/5/375/368/Prediction-of-Social-Skills-in-6-Year-Old-Children?redirectedFrom=fulltext.

Bonab, B.G., Motamedi, F., & Zare, F. (2017). Effect of Coping Strategies on Stress of Parent with Intellectual Disabilities Children. Asian Education Studies, 2 (3), 11-17. Retrieved from doi:10.20849/aes.v2i3.187.

Borg-Laufs, M. (2013). Basic Psychological Needs in Childhood and Adolescence. Journal of Education and Research, 3 (No 1), 41-51. Retrieved from doi: 10.3126 / jer.v3i0.7851.

Breslau, N., & Prabucki, K. (1987). Siblings of disabled children. Effects of chronic stress in the family. Archives of General Psychiatry, 44 (12), 1040-1046. Retrieved from http://dx.doi.org/10.1001/archpsyc.1987.01800240014003.

Duran, S., & Ergun, S. (2018). The stigma perceived by parents of intellectual disability children: an interpretative phenomenological analysis study. Anatolian Journal of Psychiatry, 19 (4), 390-396. Retrieved from doi: 10.5455/apd.282536.

Gowen, J.W., Christy, D.S., & Sparlin, J. (1993). Informational Needs of Parents of Young Children with Special Need. Journal of Early Intervention, 17 (2), 194-210. Retrieved from https://doi.org/10.1177/105381519301700209.

Hartley, S.L, Papp, L.M., Mihaila, I., Bussanich, P.M., Goetz, G., & Hickey, E.J. (2017). Couple Conflict in Parents of Children with versus without Autism: Self-Reported and Observed Findings. Journal of Child and Family Studies, 26, 2152-2165. Retrieved from doi: 10.1007 / s10826- 017-0737-1.

Hedderly, T., Baird, G., & McConachie, H. (2003). Parental reaction to disability. Current Paediatrics, 13 (1), 30-35. Retrieved from http://doi.org/10.1054/cupe.2003.0406.

Heiman, T. (2002). Parents of Children with Disabilities: Resilience, Coping, and Future Expectations. Journal of Developmental and Physical Disabilities, 14, 159-171. Retrieved from http://dx.doi.org/10.1023/A:1015219514621.

Heiman, T., & Berger, O. (2008). Parents of children with Asperger syndrome or with learning disabilities: family environment and social support. Research in Developmental Disabilities, 29 (4), 289-300. Retrieved from doi: 10.1016/j.ridd.2007.05.005 [PubMed].

Huus, K., Olsson, L. M., Elgmark Andersson, E., Granlund, M., & Augustine, L. (2017). Perceived needs among parents of children with a mild intellectual disability in Sweden. Scandinavian Journal of Disability Research, 19 (4), 307-317.

Jones, J., & Passey, J. (2004). Family Adaptation, Coping and Resources: Parents of Children with Developmental Disabilities and Behavior Problems. Journal on Developmental Disabilities, 11(1), 31-45.

Ilias, K., Cornish, K., Park., M.S., Toran, H., & Golden, K.J. (2018). Risk and Resilience among Mothers and Fathers of Primary School Age Children with ASD in Malaysia: A Qualitative Constructive Grounded Theory Approach. Front Psychol., 9, 2275. Retrieved from doi: 10.3389/fpsyg.2018.02275.

Kandel, I., & Merrick, J. (2007). The child with a disability: parental acceptance, management and coping. Scientific World Journal, 7 (Nov 12), 1799- 1809. Retrieved from doi: 10.1100/tsw.2007.265 [PubMed].

Katkic, L.O., Morovic, M.L., & Kovacic E. (2017). Parenting stress and a sense of competence in mothers of children with and without developmental disabilities. Hrvatska revija za rehabilitacijska istrazivanja, 53, 63-76. Retrieved from https://hrcak.srce.hr/193742.

Kersh, J., Hedvat, T.T., Hauser-Cram, P., & Warfield, M.E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50, 883-893.

Kowal, A., Kramer, L., Krull, J.L., & Crick, N.R. (2002). Children’s perceptions of the fairness of parental preferential treatment and their socioemotional well being. Journal of Family Psychology, 16, 297-306.

Kuchmanych, I.M., & Opanasenko, L.A. (2018). Klasyfikatsiia osoblyvykh potreb dytyny v konteksti systemnoho pidkhodu [Classification of special needs of the child in the context of a system-based approach]. Zbirnyk naukovykh prats «Problemy suchasnoi psykholohii» - Collection of research papers “Problems of modern psychology", 42, 70-93 [in Ukrainian].

Lara, E.V., & Pinos, S.S. (2017). Families with a disabled member: impact and family education. Procedia - Social and Behavioral Sciences, 418-425.

Leung, C.Y.S. & Li-Tsang, C.W.P. (2003). Quality of Life of Parents who have Children with Disabilities. Hong Kong Journal of Occupational Therapy, 13 (1), 19-24. Retrieved from https://doi.org/10.1016/S1569-1861(09)70019-1.

Maslow A.H. (1970). Motivation and Personality. New York : Harper & Row.

Neely-Barnes, S.L., & Dia, D.A. (2008). Families of children with disabilities: A review of literature and recommendations for interventions. Journal of Early and Intensive Behavior Intervention, 5(3), 93-107. Retrieved from http://dx.doi.org/10.1037/h0100425.

Pisula, E., & Porbowicz-Dorsmann, A. (2017). Family functioning, parenting stress and quality of life in mothers and fathers of Polish children with high functioning autism or Asperger syndrome. PLoS One, 12 (10). Retrieved from doi: 10.1371/journal.pone.018653.

Risdal, D., & Singer, G.H.S. (2004). Marital Adjustment in Parents of Children with Disabilities: A Historical Review and Meta-Analysis. Research & Practice for Persons with Severe Disabilities, 29, 95-103. Retrieved from http://dx.doi.org/10.2511/rpsd.29.2.95.

Seligman, M., & Darling, R. (2009). Ordinary families, special children. Edn. 3rd. New York: Guilford Press.

Urbano, R.C., & Hodapp, R.M. (2007). Divorce in families of children with Down syndrome: a population-based study. American journal of mental retardation, 112 (4), 261-74. Retrieved from doi: 10.1352/0895-8017(2007)112[261:DIF0CW]2.0.C0;2.

Downloads

Published

2022-05-31

How to Cite

Kuchmanych, I., & Opanasenko, L. (2022). The Issue on Classification of Needs of Families Raising Children with Special Needs (Systematic Approach). Collection of Research Papers "Problems of Modern Psychology", (56), 85–107. https://doi.org/10.32626/2227-6246.2022-56.85-107